About Us
Support…
for individuals with neurofibromatosis (NF) and their families is at the heart of everything we do. We want them to know that they are not alone and can reach out to us for support, community, and education. Every pamphlet, educational meeting, webinar, doctor referral, or event we produce is designed to inform and create comfort through knowledge.
Advocacy…
for federal funding for NF research is vital to our mission. Each year, we bring together individuals and NF Patient Advocacy groups from all 50 states to speak as one voice on Capitol Hill. Since 1996, the NF Network has helped to raise over $600 million dollars for NF research, and we’re not done yet.
Collaboration…
has been an essential part of the NF Network since its creation in 1988. As an umbrella organization, the NF Network facilitates collaboration among regional NF communities on national issues and with local physicians and hospitals for symposiums and clinical trial research.
NF Network By The Numbers
Nationwide Programs
NFStrong Walks
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NF Hope Concert
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Advocacy Program
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Project Hope
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Working For a Future without NF
Our Staff
Kim Bischoff
Executive Director
Deb Potter
Member Services Coordinator
Deb R
Breanna Bronowski-Stutsman
Design & Communications
Jeff Leibow
Exec Producer & Director of development, NF Hope Concert
Vanessa Merker
Science Writer
Our Board
Ryan Geier
President
John Manth
Vice President
Sharon Loftspring
Secretary
Gregg Erickson
Treasurer
Rosemary Anderson
Director
Debbie Bell
Director
Nicole Hicks
Director
Mike Sheedy
Director
Michelle Slimko
Director
Terri Rausch
Director
Cheri Stewart
Director
Shane Smith
Director
Sharon Klein
Director
Mike Montgomery
Director
Yvonne Glass
National NF Network Ambassador
Contribute to the Network
Donate
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Host an Event
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Advocate
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