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Increased Risk of Breast Cancer in Women with NF1
In recent years, it has become clear that women with NF1 are at an increased risk for breast cancer, with the risk being two to three time higher in women with NF1
‘A Different Man’ Star Adam Pearson Says His Facial Disfigurement ‘Opened Doors’
The British actor, 39, who lives with neurofibromatosis type 1, wants to hold the door open for others — and he’s challenging Hollywood to do better at telling stories about disability.
REiNS Study: Patient preferences for gene therapy in neurofibromatosis and schwannomatosis
REiNS is conducting an online research study to learn more about the perspectives of patients and guardians regarding future gene therapy. Learn how to participate.
Soundtrack of Silence: Matt Hay | TEDxWrigleyville
In this powerful TEDx talk, Matt Hay shares his inspiring journey of resilience and innovation after losing his hearing to NF2 and being faced with a life-changing decision.
I’ve Had 18 Surgeries, But I’m Still Standing Strong: ‘Faith Is My Anchor’
Antwan Winkfield’s earliest memories are shrouded in the stories his family told him. From an early age, his grandmother helped diagnose his case of NF1.