Community

NF Network, Member Organizations, & Friends, from across the US

NF Network

Acts as a national umbrella organization serving both regional and underserved areas through the collaboration of a national advocacy program, research funding opportunities, and supports the building of local NF communities through family educational meetings, and various social gatherings.

Select a Member Organization to see the states they support.

Member Organizations

NF Network

https://www.nfnetwork.org

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Alabama, Alaska, Arkansas, Delaware, Florida, Georgia, Hawaii, Idaho, Illinois, Indiana, Iowa, Kentucky, Louisiana, Maryland, Mississippi, Montana, Nevada, North Carolina, Oregon, South Carolina, Texas, Utah, Virginia, Washington, West Virginia, Wyoming

NF Arizona

Arizona

NF Tennessee

https://www.nftennessee.org

Tennessee

NF North Central

http://nfnorthcentral.nfnetwork.org

Minnesota, North Dakota, South Dakota, Wisconsin

NF Michigan

https://www.nfmich.org

Founded in January, 1985 by Sue DeGroot, MSW, a social worker at Spectrum Health in Grand Rapids. We are now called NF Michigan or Neurofibromatosis Michigan. Of the 45 people who attended the first meeting, most had little or no information about NF or were misinformed.

Michigan, Ohio

NF Central Plains

https://www.nfcentralplains.org

The mission of NF Central Plains is to support those affected by NF through education, social programs, and advocacy, with an eye toward research for treatments and a cure! Our goal is to be the primary source of information and support for those in the Central Plains region and at the same time, raise public awareness about NF.

Colorado, Kansas, Missouri, Nebraska, Oklahoma

NF Northeast

https://www.nfnortheast.org

NF Northeast is involved in every aspect of the NF journey. Our primary focus is providing resources to those affected by NF in the form of mentorship programs, scholarships, educational opportunities, online support communities, and more. We are also committed to finding treatments-and a cure -for NF by supporting medical research through our grant programs. We are proud to advocate for federal NF research funding by lobbying Congress on a national level.

Connecticut, Maine, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont

NF California

http://www.nfcalifornia.org

A non profit organization founded in February 2004, providing medical symposiums, educational meetings, family support groups as well as many other key needs for California’s medical and healthcare professionals, NF patients and their families. Meetings are held throughout California. Our focus is also to be involved in advocacy groups and provide support for NF research.

California

Inspire Network

With over 43,000 members across the country and around the world, The NF Network Inspire online support community has something for everyone. Join today and connect with others affected with neurofibromatosis that know what you’re going through for health and wellness support, because “Together We’re Better.”

Join the Community

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– Richard Wise

Inspire Member