Dr. Rachel Zoffness, pain psychologist and Assistant Clinical Professor at UCSF, provides accessible techniques for pain management; an explanation of how pain works in the brain, and how thoughts and emotions affect 100% of physical pain; and the basics of Cognitive Behavioral Therapy (CBT). Please note that this was a conversational webinar, so you will not see a video and you will hear audio only.

Please join Maria Acosta, M.D., a neurologist who specializes in Neurofibromatosis Type 1 (NF1), for bimonthly webinars discussing practical topics that will help you and your child!

In this webinar you will learn how certain apps can be used to help with executive functioning challenges. We will demonstrate and answer questions about apps that focus on note-taking organization energy management and goal-setting. Presented by Michelle Ranae Wild President/CEO of Brain Education Strategies and Technology Inc.”

Kim Bischoff, Executive Director of the NF Network and Katie Vanlandingham, from Van Scoyoc Associates, share their knowledge to help you advocate for funding for NF research to your local representatives.

Dr. Asthagiri will address questions previously submitted by members of the NF2 community.

Many individuals with NF have chronic pain that can interfere with their daily lives.While medications sometimes help, they often offer only partial relief and they can have significant side effects. In recent years, more and more people are turning to psychological techniques to help them deal with physical pain.

2016 Advocacy Training Video

Over the past few years, researchers and policymakers have realized that incorporating the patient’s and family members’ preferences and ideas into research leads to more important and more useful discoveries.

Behavior Management for Parents Harnessing the Power of Reinforcement