iPad for Education & Productivity

August 21, 2015

Using the iPad for Education and Productivity” presented by Occupational Therapist Nicole Weckherlin with St. Louis Children’s Hospital discusses apps and resources that benefit children with NF1.

Hearing Preservation

July 30, 2015

Hearing preservation or restoration is a major goal in the management of Neurofibromatosis Type 2. This discussion describes the management of patients with NF2 to prolong or restore useful hearing.

Social Emotional Webinar

September 30, 2014

Social and Emotional Development in Children with NF.

Understanding Seizures in NF1

May 6, 2014

James Tonsgard, MD, Associate Professor of Pediatrics and Neurology, Director, University of Chicago Ambulatory Program for Neurofibromatosis, discusses seizures in NF1.

Use of Technology

November 14, 2013

Vestibular schwannomas can cause hearing loss, which in turn can create significant communication problems for people with NF2. Technology exists to assist with communication for people with NF2 and works on devices that are already in use in the NF2 community.This captioned webinar will explore work that is ongoing using apps and iPads to help support communication for people with NF2

Affordable Health Care Act

September 26, 2013

Cheryl Fish Parcham is Deputy Director of Health Policy at Families USA, a national non-profit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Here you will learn more about the new options for coverage and how to qualify for assistance.

CDMRP NF Research

July 15, 2013

Neurofibromatosis 1 Tumor Suppressor research funded through the Congressionally Directed Medical Research Program.

NF1 & School Issues

June 21, 2013

NF1 and School Issues presented by James Tonsgard MD Director University of Chicago Ambulatory Program for NF discusses the spectrum and diagnosis of learning disabilities and cognitive issues that can be associated with NF1. ”

Optic Gliomas in NF1

June 17, 2013

Robert Listernick, MD, NF Clinic Director, Children’s Memorial Hospital in Chicago, IL is one of the foremost physicians on the management and treatment of optic gliomas in children with NF1.