Webinars
iPad for Education & Productivity
August 21, 2015
Using the iPad for Education and Productivity” presented by Occupational Therapist Nicole Weckherlin with St. Louis Children’s Hospital discusses apps and resources that benefit children with NF1.
Hearing Preservation
July 30, 2015
Hearing preservation or restoration is a major goal in the management of Neurofibromatosis Type 2. This discussion describes the management of patients with NF2 to prolong or restore useful hearing.
Understanding Seizures in NF1
May 6, 2014
James Tonsgard, MD, Associate Professor of Pediatrics and Neurology, Director, University of Chicago Ambulatory Program for Neurofibromatosis, discusses seizures in NF1.
Use of Technology
November 14, 2013
Vestibular schwannomas can cause hearing loss, which in turn can create significant communication problems for people with NF2. Technology exists to assist with communication for people with NF2 and works on devices that are already in use in the NF2 community.This captioned webinar will explore work that is ongoing using apps and iPads to help support communication for people with NF2
Affordable Health Care Act
September 26, 2013
Cheryl Fish Parcham is Deputy Director of Health Policy at Families USA, a national non-profit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Here you will learn more about the new options for coverage and how to qualify for assistance.
CDMRP NF Research
July 15, 2013
Neurofibromatosis 1 Tumor Suppressor research funded through the Congressionally Directed Medical Research Program.
NF1 & School Issues
June 21, 2013
NF1 and School Issues presented by James Tonsgard MD Director University of Chicago Ambulatory Program for NF discusses the spectrum and diagnosis of learning disabilities and cognitive issues that can be associated with NF1. ”
Optic Gliomas in NF1
June 17, 2013
Robert Listernick, MD, NF Clinic Director, Children’s Memorial Hospital in Chicago, IL is one of the foremost physicians on the management and treatment of optic gliomas in children with NF1.

