Join the NF Network with John J. Mulvihill, MD, Dept. of Genetics, Oklahoma University Medical Center for an all new webinar on NF1 and aging. Dr. Mulvihill has extensively studied the effects of NF1, aging, and how NF changes during the aging process.

“10 Things Everyone Should Know About Their NF1” presented by Doug Stewart MD Investigator Clinical Genetics Branch Division of Cancer Epidemiology and Genetics National Cancer Institute. Dr. Stewart will offer practical advice to people living with NF1 especially in working with doctors to get the best care possible.

Dr. William H. Slattery heads the Department of Clinical Studies at the House Research Institute in California. Dr. Slattery’s presentation will focus on Auditory Brain Implant (ABI) and Cochlear Implant (CI) advancements.

The Genetics of NF2″ presented by renowned UK Geneticist Dr. Gareth Evans. Dr. Evans practices at St. Mary’s Children’s Hospital in Manchester where he is also is the head of the NF2 Clinic. He has a wealth of experience with NF2 and currently see’s most of the NF2 patients in the UK. He has published numerous articles on his research on the Genetics of NF2.”

Scott Plotkin, MD of Massachusetts General Hospital Harvard NF Clinic presents the latest information on schwannomatosis.

Susan Fitzsimonds is the author of the book The Hero in Me which she uses as the cornerstone of her anti-bullying presentations. In this webinar, Fitzsimonds will define the aggressive behavior of a bully, and offers students methods of dealing with bullies. She empowers students to have the tools when someone exhibits aggression towards them.

Dr. Gutmann is an internationally recognized expert in NF, and was a member of the research group that identified the entire NF1 gene. He has twenty years of experience in the care of children and adults with NF, and directs a large basic science research laboratory working on NF.

Your voice is critical to obtain federal funding for NF research. Each year it is necessary to contact Congress to secure federal funding for NF research. You can help us advocate for federal funds by scheduling meetings and writing to your Senators and Representatives.

Research Advances in NF2″ presented by Ashok R. Asthagiri M.D. Principal Investigator at the National Institute of Neurological Disorders and Stroke (NINDS) National Institutes of Health. Dr. Asthagiri will speak about the NF2 natural history study and findings to date as well as the NF2 program at the National Institute of Health (NIH).